Mental Health Online: Forums

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In 1994, Dr Phillip Long founded www.mentalhealth.com aiming to create a cross-cultural encyclopaedia of mental health conditions. The site is looking a little archaic now, using older DSM categories not commonly used now, and containing diagnostic ideas that didn’t really catch on, such as analysing all mental health symptoms through Greek personality dimensions.

mentalhealth.com post
While the site may not be entirely relevant these days, it’s a fascinating and detailed read. Moreover, it’s attached forum has been consistently running since 2005. In internet terms, this is an incredibly long time. Imagining friendships possibly extending for 10 years, its easy to see the best part of forums; their ability to connect people with others across time and space, providing friendships built on common experience and support.

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Mental Health Online: Tumblr

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Of all the major social networks, Tumblr is the one I wanted to write about the most, because its a dramatic difference from the stoicism of Twitter and the envy-inducing highlight reel of Facebook. Just like most of its users, its young, bold, and easily misunderstood.

#History

For the uninitiated, Tumblr is a microblogging site with a very “anything goes” attitude towards content: drawings, videos, music, gifs, longform text, links and pretty much anything else you can think of are all found there. Its major feature is reblogging, which is reposting someone else’s content onto your own feed and adding commentary, opinions, or a visual response- a cross between a Twitter retweet and a standard blog’s comment chain. Content is organised and collected using hashtags, which are essential for posts being discovered and read.

Part of Tumblr’s appeal is how it conveys the impression of a private, almost clandestine association. Continue reading

Mental Health Online: Twitter

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Compared to Facebook, I didn’t think of Twitter as a useful place for discussing mental health issues. This was partly due to the 140 character limit; I couldn’t see the use of tweets for in-depth discussion compared to something like a blog post or video.

However, when I looked through my twitter feed more closely, there was a lot of talk about mental health. Most of the people talking were advocates; either they wanted to start conversations, to support mental health organisations, or start their own campaigns. And most of these advocates were survivors, using their experiences with mental health to show others why researching mental health matters.

#Academia

Twitter doesn’t have the same kind of scare-headline news stories as Facebook, and there isn’t any research saying it affects people negatively. However, there is some research on  responses to individual hashtags. Shepherd et al studied the #DearMentalHealthProfessionals thread, a conversation set up by Amanda O’Connell in August 2013, and found there were four main types of discussion:
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Mental Health Online: Facebook

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Everyone, their mum, and their cat has Facebook, or so it can often seem.  As one of the most subscribed-to places online, and perhaps some people’s only online connection, looking at what Facebook has to do with mental health could be important on a large scale.

Simply searching for “Facebook” flags up a New Yorker headline- “How Facebook Makes Us Unhappy”. Narrowing it down to “facebook and mental health” adds BrainBlogger’s  “Facebook is no friend to mental health”, and “7 Ways Facebook is Bad For Your Mental Health, from Psychology Today. 

The BrainBlogger and Psychology Today articles were almost uniformly negative, showing research that connects Facebook use to envious friendships, jealous relationships and decreased life satisfaction.

The New Yorker article included its fair share research on the unhappy consequences of Facebook usage, but also  included some optimistic findings . Their best answer was; it depends what people are actually doing on Facebook. People actively using Facebook to keep in contact and engage with loved ones benefit from the social connection. People passively browsing their timelines, however, are often left feeling worse after using Facebook.

Facebook as a mental health resource

If actively participating on Facebook is generally beneficial, does that make Facebook a good resource for people with mental health issues?

Facebook Suicide Prevention Initiative

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On February 25th, Facebook’s safety division announced an extension of their suicide prevention initiative. They describe the initiative as being based on work with suicide prevention organisations, clinical research, and lived experiences from mental health survivors.

From what I’ve seen so far, parts of this initiative seem beneficial,  and  useful for helping people through a bad night or self-destructive impulse. However, there are still some concerning areas, and there has already been at least one example of just how this initiative can be dealt with wrongly.

THE BENEFITS

Firstly, the good parts. For a potentially-suicidal person, the idea of pointing out that they seem upset or distressed from what they have posted is a good one- it might be what makes them realise they are having difficulties beyond typical life, and might encourage them to see what the offered help is.

For the person who flags a status, having the option to send an anonymous “someone thinks you might be in trouble” message reduces one of the barriers people often have in talking about mental health issues. It starts the conversation in a low-risk way, without  requiring a face-to-face question that many people just don’t know how to carry out.
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Treating Mental Health Issues: Definitions

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When talking about treating mental health issues, it’s important to look at what medical staff, researchers, and people with mental health issues consider to be successful treatment. As its a lot harder to measure and accurately define mental health symptoms than physical ones, it is harder to accurately judge treating them. To show what kind of terms are used when treating mental health conditions, I’m  using some hypothetical case studies. Imagine that each of these patients has just been diagnosed as being in their first Major Depressive Episode, and this is their first mental health issue. Each patient starts with a score of 18 on the PHQ-9, representing moderately severe depression using that system, is treated with an antidepressant, and is followed up six months later.

Response

After a six-week course of medication, Patient A retakes the PHQ-9 and scores 14. Six months later, their score is 15. Because their score has stayed lower, Patient A has had a treatment response. Their diagnosis would not change. In a purely medical sense, this is progress. An academic study testing the effectiveness of patient A’s antidepressant would be happy with a 3-point response, and would consider this a successful response. However, the patient themselves won’t see it that way.
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Diagnosing Mental Health Issues: What is Mental Health?

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There is currently more published information about mental health than ever before, and it has never been so easy to connect with experts, health workers and charities supporting mental health issues. Yet misinformation, stereotypes and stigma still exist, and often people still don’t know where to turn. The problem isn’t a lack of information, but in communicating what information we currently have, and what we need to have. One of the most basic pieces of information would be a clear description of exactly what people mean when they talk about mental health and mental health issues. Definitions are often expressed differently depending on who the target audience is; articles written for a general audience will often focus on a single problem or dysfunction, while medical articles get more of the complexity across. Here are some examples of different online resources, and their definitions.

Layman’s definitions

Mind: “problems that affect they way you think, feel, or behave”.
Wikipedia: a mental or behavioural pattern or anomaly that causes either suffering or an impaired ability to function in ordinary life (disability), and which is not a developmental or social norm.
BBC Science: symptoms  that go beyond typical responses, and are severe enough to interfere with a person’s ability to function.

Diagnostic Manuals

Now for the big one, the DSM- IV. As you might expect, this is a comprehensive and rigid explanation:

  • A clinically significant behavioural or psychological syndrome or pattern that occurs in an individual and that is associated with present distress or disability or with a significantly increased risk of suffering death, pain, disability, or an important loss of freedom.
  • [This] must not be merely an expectable and culturally sanctioned response to a particular event.
  • A manifestation of a behavioural, psychological, or biological dysfunction in the individual.
  • Neither deviant behaviour (e.g., political, religious, or sexual) nor conflicts that are primarily between the individual and society are mental disorders unless the deviance or conflict is a symptom of a dysfunction in the individual, as described above.”

Breaking this down, the DSM requires a mental health condition to be a pattern of symptoms that cause suffering to the person, go beyond culturally normal experiences, and are caused by a biological or psychological difference in that person. The ICD- 10  definition is a common research basis, striking a good balance between comprehension and simplicity. They define a mental illness as “a clinically recognizable set of symptoms or behaviours associated in most cases with distress and with interference with personal functions.”

From Illness to Wellness

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